It's Saturday ... so of course I am doing what I do every Saturday - dreading going to church. Researching online to find some kind of answer as to what to do. Do we just try to play church music at home and read the scriptures so we feel the spirit or do we try church again, being stressed and emotional? Will it ever get easier? Will I ever feel the spirit at church? Is it just me, or are there other moms out there? In my search I came across this article online & it hit home! I wasn't alone!!! - So for any of you lds Autism mommies... read this...A celebrity mom recently wrote about the reaction of others when a child is diagnosed with autism. She tells in her book of how people rush to attend to the parents of a child with a cancer diagnosis, but hide from the parents of an autistic child.
I remember similar feelings as I watched the sign-up sheets go around our ward for a child in a wheelchair. There weren't any sign-up sheets for my son with autism. And what would people even sign up to do? It can be clearer to see the needs of a physical disability, but what about a neurological one?
When Meridian initially asked me to write about what members and ward leaders can do to help an autism child and their families, my mind went blank. What would I even want on those sign-up sheets if there was one for my family? I guess if I knew how to “fix” his behavior at church, I would have done it.
Despite five years of struggling at church to attend with our son, I felt that the challenges changed each week and the answers became more and more elusive. With a disability like autism, you never know what's going to happen. My husband and I woke up each Sunday and held on for dear life, uncertain of what the day held for our son — and us.
Autistic children struggle at any church, not just in Mormon congregations. They struggle for a variety of reasons — the loud noises, uncertainty of the schedule, confusion in social situations and more.
For my son, we could usually expect rolling around the floor and screaming — often throughout the meetings. He was instantly over-stimulated when we'd walk into the building. He'd usually fixate on a certain thing and be determined to get there no matter what — things like throwing a ball off the stage over and over again or opening all the clerks' offices to see their computers. He'd have these rituals that he had to do at church no matter what we did to stop him. Any “good” behaviors that we'd taught him at home went by the wayside as the church environment overpowered his senses.
We were about at the end of our rope with church attendance and autism. It was physically and emotionally exhausting, not uplifting, to attend church with him. I was starting to wonder how many more Sundays I could attend and go home in tears while my son had tantrum after tantrum at church. - By Sharisa Lewis
I still do not know any answers of what to do, but it felt great to know I wasn't alone. Autism brings a lot of challenges but somehow church is the hardest one for me. Maybe because it is something I really want and can't seem to get.